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The National Association for the Relief of Paget's Disease

The National Association for the Relief of Paget's Disease

The Role of the NARPD
The National Association for the Relief of Paget's Disease was founded in 1973 by the late Mrs Ann Stansfield, whose husband suffered with the disease for 27 years and experienced considerable difficulty obtaining information, understanding or support for the condition, Mrs Stansfield received an M.B.E. for her tireless work in 1983.

The NARPD aims to encourage, promote and assist research into the diagnosis, treatment and prevention of the disease and to assist the relief of patients. At the NARPD, much of our work goes into providing support for sufferers of Paget's Disease and we send information to all enquirers free of charge.

Due to our extensive links with medical professionals, we are also able to help sufferers gain the treatment they need by directing them to consultants who specialise in the treatment of Paget's Disease.

We offer both a professional and lay-persons' membership scheme for a fee of £10 per annum which will keep members in touch with the latest developments in the field. From this year professional members will receive their own biannual Newsletter as well as continuing to receive the lay-persons' Newsletter.

The benefits of professional membership include:

  • regular newsletters
  • access to educational materials
  • regular update of reference of relevance to Paget's Disease
  • participation in the activities of the Association.

Paget's Disease - some facts:

  • 1 in 20 of the older population of this country suffers from Paget's disease.
  • In some areas this can be as high as 1 in 12 of people over the age of 40!
  • Paget's disease is a severe, crippling bone disease for which there is no cure and no known cause.
  • Paget's disease was discovered in the UK during Queen Victoria's reign and we can boast to having many of the world's leading doctors and scientific experts, but their hands are tied.
  • In the USA, millions of dollars are being invested by the government on research into Paget's disease.
  • The UK government has no programme for funding Paget's disease research.

For further information contact:
The National Association for the Relief of Pagers Disease
323 Manchester Road,
Walkden,
Worsley,
Manchester M28 3HH

Tel. No: 0161 7994646
Fax No: 0161 7996511

E-mail: director@paget.org.uk

For further information visit the website: www.paget.org.uk

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